Long Ago I Recieved A Wrong Diagnosis...Diagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't...reactions2comments
Self-Care For Spoonies: More Than A Buzzword...The National Institute on Mental Health says that self-care “means taking the time to do things that help you live well and...reactions4comments
Eye Irritation: My Journey With Iritis...Have you ever felt like you had a piece of dirt stuck in your eye, and no matter how many times you...reactions13comments
Chronic Illness And Sensory Overstimulation...Inspired by a post by The Unchargeables, an Instagram account dedicated to those of us with chronic illness, I was thinking about...reactions2comments
Bent Out of Shape at 93...I have had back pain for many years. What started as a friend poking me and saying, "stand up straight", has ended...reactions8comments
The Start of My Journey...Hi, as I am fairly new to the group I thought I would share my story as to when I got diagnosed...reactions25comments
60 Years with AS...I can say to other sufferers that you can get through this. I was diagnosed at the age of 17 and I...reactions4comments
Great, Kid! Don't Get Cocky!...Until yesterday, I’d gotten a bit cocky about my AS being so much better while taking Enbrel. I’d had a semi-productive morning...reactions7comments
Creating Routines With Unpredictable Symptoms...Cultivating and sticking to a strict routine when your symptoms can change, worsen or arise quite suddenly can be challenging to say...reactions3comments
Finding a Hobby That Works With Your Limitations...It’s heartbreaking watching your body slowly deteriorate and transform into something you don’t even recognize anymore. Many of us used to be...reactions6comments
3 Years Of AS: Reflecting On My Journey So Far...This January marks the third anniversary of my AS diagnosis. However, I can’t tell you the exact date. The previous January, a close...reactions2comments
It Could Be Worse...I am a 52 year old male with the hlab27 gene. I have 6 children and ten grandchildren. 2 of my children...reactions4comments
No One Gets It......So right now I am definitely (hopefully) in the peak of my condition. My AS has been super intense with flares and...reactions15comments
Becoming Butterflies...The idea of raising butterflies never crossed my mind until I spotted two mature Eastern Black Swallowtail caterpillars lazily munching away on...reactions4comments
AS and the Military...Been living with AS since my time in the USArmy. It started with a sharp pain in my left ankle. I hobbled...reactions5comments
Getting Ready for My Hip Surgery...Soon I will undergo right hip surgery. After a more than a year of hip pain, trying every conservative measure possible (physio...reactions5comments
The Fear of My Symptoms Getting Bad Again...If you live with AS or any chronic illness, I’m sure you know the feeling of what I’m about to talk about...reactions5comments
Living, Working, Experiencing Disability...When you are someone who experiences disability, there are many barriers that you face in your everyday life. There is a lot...reactions4comments
The Many Doctors Who Manage My Axial Spondyloarthritis...One question I get often is "who treats axial spondyloarthritis?" Typically, this question arises from individuals with some of the symptoms of...reactions11comments
Dry Eyes With Biologics...Soon after getting my diagnosis with AxSpa (after years of waiting for a diagnosis, though), and starting my first biologic treatment (Embrel)...reactions8comments
