Pain-night to morningI'd like to know if anyone experiences the following; From , 6 pm to 7 am or even 2 hours later in the morning, a trigger is pulled and pain...Reactions0reactionsComments8 replies
Biologics Side EffectsI recently started biologic injections (Cosentyx) to help manage my axSpA. 2 days after my injection I get flu like symptoms (nausea, headache, brain fog, fatigue). This seems to pass...Reactions0reactionsComments6 repliesAxial Spondyloarthritis Side EffectsTips & Advice
"But You Don't Look Sick?!"Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...Reactions0reactionsComments21 repliesFriends & FamilyMisunderstood Tips & Advice
Ankylosing Spondylitis or lung cancer?Hi all, I have just joined this forum because my dad is having some tests at the hospital. A couple of weeks ago, he went for a PET CT, arranged...Reactions0reactionsComments1 replies
Biologics I switched from the biologic (Cosentyx) that had been working for a while, to a biologic that was approved for use during pregnancy. Well turns out another baby is just...Reactions0reactionsComments4 repliesTreatment
Biologics (humira) and food intolerance I've been diagnosed with Peripheral Spondyloarthritis and was wondering if anyone who started a biologic has noticed any improvements in their gut health. I've had severe gut problems for the...Reactions0reactionsComments19 replies
How long did it take for you to be diagnosed?Let me know below how long it took between your symptoms starting and getting your diagnosis? I feel very lucky that I was diagnosed within a year of my symptoms...Reactions0reactionsComments20 repliesDiagnosisNon-Radiographic Axial SpondyloarthritisTreatment
Living With AxSpa and Peripheral Spondyloarthritis When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA, including: -Psoriatic arthritis (PsA) -Reactive arthritis -Arthritis with...Reactions0reactionsComments30 repliesPeripheral SpondyloarthritisTips & AdviceCoping
How long did it take you to get a diagnosis for AxSpA/AS?It can take years to get a diagnosis for axial spondyloarthritis/ankylosing spondylitis. On average, it can take somewhere between 8-11 years from initial symptom onset to get diagnosed. However, many...Reactions0reactionsComments2 replies
HEREDITARY HEMOCHROMATOSIS DNA MUTI have one set of faulty H63D and C282Y has anyone had experience with this any suggestions I'm so confused because there's so many things that it could be...Reactions0reactionsComments3 repliesComorbidities
