4 Ways Self-Care Is Like Knitting...I’m learning to knit. This was entirely unexpected after 15 years of crochet and a lifetime of being surrounded by crochet. My mother crocheted. I crochet. My (imaginary) daughter Dawn...Reactions0reactionsComments4 comments
Don't Be a Pain in My AS!...When you become ill it seems like everyone around you all of a sudden becomes a "doctor." They want to tell you what you should be eating, how you should...Reactions0reactionsComments4 comments
Steriods...Hi, I’m wondering if any of you have been taking steroids to help in a bad flare....Reactions0reactionsComments6 replies
Reminders For Days When I Haven’t Slept...Typed into the notes section of my phone are a collection of messages that no one sees but me. I think of them as my AS first-aid kits. Some of...Reactions0reactionsComments5 comments
My First (And Only) Experience With Humira...In late 2017, I was prescribed Humira, an immunosuppressant delivered to my home in a Styrofoam crate accompanied by many colorful pamphlets. To learn how to inject myself, I went...Reactions0reactionsComments4 comments
Trouble Sleeping With Ankylosing Spondylitis...I find diet, a lot of mild exercises and mindset are my 3 greatest allies in managing AS. The only problem is sleeping more than 4 hrs. Who has any...Reactions0reactionsComments14 comments
Falling, again!...To my sisters and brothers who comprise the warriors here, I thought I would share my latest story. I have had ankylosing spondylitis and rheumatoid arthritis for 12 years. I...Reactions0reactionsComments12 comments
My fellas holidays...I dread when this happens. My fella has 20 days off for his works holidays and now I'm expected to be the old me. It's been 6 days and I've...Reactions0reactionsComments3 replies
Where Is My Energy When I Need it the Most?...Energy is what we need to keep going. Energy is what we need to feel good. Energy is what we need for our day to be productive. Energy is what...Reactions0reactionsComments9 comments
How to Cope With a New Diagnosis...Being newly diagnosed can be a daunting and overwhelming experience. While a new diagnosis is never easy, I share some steps that helped me cope with the mental impacts of...Reactions0reactionsComments4 comments
Jill King...Jill was previously a health leader on AxialSpondyloarthritis.net. Jill King was diagnosed with non-radiographic axial spondyloarthritis (nr-AxSpa) when she was 21 years old. After confirming sacroiliitis through SI joint injections...
How I Cope With AS and Fibromyalgia...Everyone deals with pain and fatigue differently. Those are my main symptoms from AS and fibromyalgia. My fibro diagnosis came a few months after my AS diagnosis. At first, I...Reactions0reactionsComments20 comments
The Long Drive...Every year my wife and I drive down to the family cabin in Georgia. This trip is significant to me because it is my annual week to recharge before the...Reactions0reactionsComments3 comments
Hi! I'm Flávia!...Hi! I'm Flávia, I'm 34 years old and I'm from Portugal and I'm write today for you for the first time to blurt out my emotions. I was diagnosed with...Reactions0reactionsComments2 repliesTreatmentWork & EmploymentNon-Radiographic Axial Spondyloarthritis
Forgive Yourself For Not Being Healthy...For AS Community, Five months ago, I quit my full-time job of three years managing a compliance team of technical writers at an adult educational institute. In all honesty, I...Reactions0reactionsComments9 comments
AS and RA Won't Win...I was a child with birth defects. My mom and dad chose me over the doctor's recommendation to let the state take over. 1962 was a different time. I finally...Reactions0reactionsComments2 comments
Availability of TNF Medications After 65...I was diagnosed almost 15 years ago with AS. After I finished with my denial and trips to the ER, I began treatment with Humira and methotrexate for repeated uveitis...Reactions0reactionsComments5 comments
My New Food and Movement in Managing Ankylosing Spondylitis...Content warning: Eating behaviors and nutrition. There are usually three camps when it comes to managing ankylosing spondylitis (AS) and other chronic inflammatory conditions. The first is the pharmaceutical camp...Reactions0reactionsComments19 comments
The Weight of Fatigue...Of all the ankylosing spondylitis and fibromyalgia symptoms I experience daily, fatigue is one of the worst. For me, it’s just as bad as the chronic pain. I’m just always...Reactions0reactionsComments14 comments
The Negative Impact of Positivity Culture...I once worked for a company where the notion of positivity was prized above all else. Falling short of your sales target? Stop finding excuses! Current system not working? Stop...Reactions0reactionsComments6 comments