Beware...I've taken a number of falls, but none ever seriously. But, I am unable to lift myself from the floor. Each time my wife helps me and I use my...reactions1comment
Conflicting results of blood work...Hey all. I was diagnosed with Ankylosing Spondylitis (AS) in July 2021 after experiencing hallmark symptoms (including bilateral sacroiliitis) since November 2020. I have always found it curious that I...reactions3repliesAwareness
Working from Home with AxSpa...Hello everyone. I work from home for my main job. I have a nice desk and monitor that I LOVE but avoid due to my desk chair not aiding my...reactions6repliesTips & AdviceAssistive DevicesWork & Employment
Sugar...Does anyone know if sugar affects inflammation or not. I crave every thing sweet, and sugary. And I just feel blah, been having flare ups more than usual....reactions1reply
My First Time Traveling Since Becoming Homebound...A little over a year ago I wanted to surprise my fiancé with something big for our 3 year anniversary--a trip to Las Vegas for an Emo Festival. I snagged...reactions3comments
The Pain of Being the Spondy Sub...You all might know that I am a teacher, but I don’t imagine too many of my readers know what kind of teacher I am. My current placement is as...reactions5comments
The Verdict in My Low Dose Naltrexone Experiment...It’s been just over two years since I started taking Low Dose Naltrexone to help manage my AS. LDN is a somewhat controversial, off-label prescription that is well known in...reactions17comments
Getting Through the Cold Months With AS...Having ankylosing spondylitis, you feel like you are a human barometer sometimes. It is getting colder, I can feel it in my hips, back (insert wherever you feel it or...reactions6comments
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
Himura ...Hi there is anyone currently taking Himura for their ankylosing spondylitis and if so can you please tell me the side effects. I've to be started on theses jabs soon...reactions8repliesAxial Spondyloarthritis
Self-Care During the Holiday Season and Beyond...On the Monday after the Thanksgiving holiday, many of my patients reported severe flares of their arthritis and back pain from ankylosing spondylitis (AS). One woman who was recently diagnosed...reactions6comments
Luggage, Long Lines, and Jet-Lag...When my daughter received notice of acceptance into the University of Edinburgh for her Master's degree, she asked, "Will you go with me to get me settled?" Of course, I...reactions6comments
Hi Everyone, just want to introduce myself...I have had a bad spine since my early 20's. It has been going down hill ever since. My story is long and complicated. I am in my early 60's...reactions1replyCommunity Support
Hip replacements ...Has anyone had both hips replaced? I’m 35 and replaced my left hip in spring 2021 and am desperately looking forward to getting the right hip replaced 12/23/22. I’ve loved...reactions1replySurgerySymptomsComorbidities
Remission From Ankylosing Spondylitis: The Search for a Unicorn...In something of a weird coincidence, my step-father also had ankylosing spondylitis. Russ died tragically in a car accident several years before I was diagnosed, and most of my knowledge...reactions8comments
Sticking With My Healthy Habits Through the Holidays...The holidays are approaching fast! I will go home to see my family in the south of France for two weeks! What happens to my daily healthy habits which have proven...reactions3comments
My Medication Temperature Troubles...Ankylosing spondylitis is certainly a condition full of challenges. Medications like Enbrel, which I take, are supposed to help. Although sometimes they can bring a whole lot of challenges themselves...reactions12comments
Chronic Help For Chronic Pain: Trying Marijuana For Pain For The First Time...On my recent trip to Mexico and the USA, I was unable to bring my Enbrel injections with me. As I would be traveling around during the 2 weeks I was...reactions13comments
Redefining My Identity With AxSpa...I’ve told my personal story with AxSpa many times over. Following my diagnosis I decided to help create awareness by creating a blog called Living Well With AS. In it...reactions7comments
Periods and AxSpa...Hello everyone, Question for my fellow AFAB people with AxSpa -- does your period aggravate your AxSpa pain? I just got through my period and I have severely painful periods...reactions3repliesSymptomsCopingTips & Advice
