The Moment I Stopped Fighting...The AS warrior! I was a fully fledged soldier on the battle to fight this disease. I threw everything at it and with aggression. Phrases such as "my body hates...Reactions0reactionsComments3 comments
MRI findings ...Hi all, Still awaiting official diagnosis but had my mri the other week which showed non-specific thoracic changes (hyperintensity) and evidence of hyperintensity of the sacral side of SI joint...Reactions0reactionsComments4 repliesDiagnosis
MRI - Positive or Negative...I am a 47-year-old female who was diagnosed with non-radiographic axial spondyloarthritis two years ago. I am HLA-B27 positive, and my MRI shows inflammation. All this time my blood inflammation...Reactions0reactionsComments4 comments
Yeast infections and AS...Hello All, I am new to this forum and I am so happy to have found you guys. Long story short I check all the boxes for AS ever since...Reactions0reactionsComments1 repliesSymptoms
Feedback Appreciated...Hi everyone. I'm here to reach out on behalf of my 32 year old son who suffers with chronic AS. He was diagnosed back in 2016 as this being the...Reactions0reactionsComments2 repliesAxial Spondyloarthritis
The Big Ride With Ankylosing Spondylitis...I did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it is called the Indy N.I.T.E. Ride. It started...Reactions0reactionsComments9 comments
The Waiting Game...This chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like a “coming of age” thing as a chronically...Reactions0reactionsComments3 comments
Another Sleepless Night...Another night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I have been feeling again for a few nights...Reactions0reactionsComments23 comments
I Had a Busy Summer - How I’m Doing Now!...The summer of 2022 was a wild ride for me. It started with being sick for 8 straight weeks, with 2 hospital visits in the mix. After that, I was...Reactions0reactionsComments1 comments
Grief and Chronic Illness...We most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to us passes away. In its simplest form, though...Reactions0reactionsComments3 comments
4 Reasons Why I'm (Kind Of) A Prepper...My mother and I lived with her parents throughout my childhood, which exposed me to lots of stories about The Great Depression, World War Two, and the evils of unnecessary...Reactions0reactionsComments3 comments
Deciding to Have Children With Ankylosing Spondylitis...I was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area and had access to excellent medical care. I...Reactions0reactionsComments4 comments
Expectations of Treatment: Rheumatology...Having managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians. Nevertheless, 99% of the time I have been...Reactions0reactionsComments4 comments
MRI - positive or negative...Hello, I am 47 year old female and was diagnosed with nr-axspa two years ago. I am hla-b27 pozitive and my MRI then showed inflammation. All this time my blood...Reactions0reactionsComments1 replies
Treatment for AS...I was diagnosed with AS in 2012. I've been prescribed nsaids like arcoxia, vimovo and they dont work anymore for me. Then i was prescribed dmard called methotrexate, self injection...Reactions0reactionsComments5 repliesTreatment
Differentiating Inflammatory Back Pain from Osteoarthritis...Inflammatory back pain refers to pain and stiffness that comes along with an autoimmune condition such as ankylosing spondylitis. Wear-and-tear osteoarthritis and degenerative disc disease usually occurs over time with...Reactions0reactionsComments9 comments
Prepare To Share: Learning How to Tell AS Stories...We all have a story to tell. Some open people's eyes, excite the mind, or take your listeners to another world. On the other hand, some people’s stories are boring...Reactions0reactionsComments8 comments
Navigating the Online World of Axial Spondyloarthritis...Like so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I was so thankful to discover an assortment of...Reactions0reactionsComments3 comments
How to Navigate a Diagnosis Without a Good Support System...A diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having a sound support system, in general, is essential...Reactions0reactionsComments9 comments
Flares...How long was your longest flare? Is it normal for it to be years long?...Reactions0reactionsComments22 repliesFlare Management
