Flares...How long was your longest flare? Is it normal for it to be years long?...Reactions0reactionsComments22 repliesFlare Management
Design Project to create a pillow for back/neck stiffness associated with AS...Hi, I am a part of a team a Swinburne University of Technology doing a design project with TOM Melbourne. Our project is to design a pillow for someone with...Reactions0reactionsComments4 repliesSleepAlternative TreatmentExercise
Feeling down ...I feel so down and have been feeling this way for days depression is bad for me when I feel like this it’s like there’s no end I just wish...Reactions0reactionsComments3 repliesCoping
Discouraged ...I'm discouraged and don't know what to do. Im 38 year's old. Three years ago about a month after having a baby, I felt like I had been hit by...Reactions0reactionsComments4 repliesDiagnosis
Does anyone with AS have knots or bumps on the back of your arm, from hand to elbow?...These knots or bumps hurt and itch, also they can break open! Have had this for years, NO ANSWERS from doctors?...Reactions0reactionsComments1 repliesDiagnosis
I Survived Hurricane Ian With AS...I moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as for myself, the bitter cold weather of NY...Reactions0reactionsComments6 comments
Still awaiting official diagnosis ...Hi all! Currently struggling as my rheum seems reluctant to diagnose me.It all started about 3 years ago when I started to experience a dull ache in my left shoulder...Reactions0reactionsComments2 repliesDiagnosis
Healing Is A Process...A few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to live with it, manage some symptoms, cope with...Reactions0reactionsComments16 comments
Biologics: To Take or Not to Take? That is the Question!...When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that can manage and slow the progression of AS...Reactions0reactionsComments3 comments
Going on My First Trip Post Diagnosis and Pandemic...Of course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as...Reactions0reactionsComments2 comments
Awaiting diagnosis, if caught early enough can I stop the spine fusing...Hi everyone. Just awaiting some scans to confirm/ rule out AS. rheumatologist has said she reckons spondyloarthritis but can't rule out AS AS I tested positive for hla-b27. I don't...Reactions0reactionsComments3 replies
Do my symptoms seems similar to anyone else's?...Hi everyone, I'm brand new to this forum. I have been seeing a rheumatologist and I had a positive HLA-B27 result and have had a few intense episodes where my...Reactions0reactionsComments3 repliesSymptomsExercise
My Tug of Spondyloarthritis War...Do you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...Reactions0reactionsComments2 comments
An Invitation to an Event Full of Emotions...One thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been...Reactions0reactionsComments4 comments
Abdominal pain...Does your back hurt around to the front? Very low. It hurts in to the groin a lot but lately hurts also in to my abdomen. My PT says it...Reactions0reactionsComments11 replies
Is It Time To Turn The Page?...Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents, and even my childhood dog were all alive...Reactions0reactionsComments1 comments
Dr. Donica Baker...Donica Liu Baker, MD, FACR is a board-certified rheumatologist practicing the art of medicine in her beloved hometown of St. Louis, Missouri. With roots in the field of Kinesiology, she...
Using a Wheelchair in Public for the First Time...I’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...Reactions0reactionsComments7 comments
Flying With AS: Tips and Tricks...I remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...Reactions0reactionsComments10 comments
