How to Care for the Caregiver...“But honey, what can we do to help you?” It’s a question that echoes in my head from time to time. It’s...reactions1comment
How Changing My Diet Sent My AS Into Remission...Editor's note: Please check with trusted doctor, dietician, and/or healthcare provider before beginning any significant dietary changes. In early 2017, dissatisfied with...reactions1comment
How do you support yourself during the flare? ...Often I am very hard on myself during a flare. I realize now that I shouldn't be. I need to be kind...reactions14repliesCopingTips & AdviceFlare Management
How to get an AS diagnosis?...My 18 year old son has had AS symptoms, on and off, since he was 14. Debilitating pain that has affected his...reactions9repliesTips & AdviceDiagnosisSymptoms
Night sweats...Night sweats is a new symptom for me. Does anyone else experience this with flares? Thanks!...reactions1replyFlares
Describe AxSpa in 3 words...I'll start: Unpredictable painful flares...reactions3repliesAwarenessCommunity SupportVenting
It's a new month! ...For me, January was an awful month. I had a big flare-up that lasted weeks. Now that I've come out of that...reactions6repliesFatigue Flares Coping
Taking Risks as a Chronically Ill Person...As a sick and disabled person, it isn’t very often that I actually get to take risks or even have the choice...reactions3comments
I Have No Clue What I’m Doing with My Life...I know, I know-—none of us really know what we’re doing with our lives. The majority of the world is just fumbling...reactions5comments
Movement Is Medicine: My Strongest Tool Against Symptoms...Movement has played – and still does – a huge role on my healing journey. If I don’t move daily, my body...reactions5comments
New Year's Resolution: AxSpA Edition...My resolution this year is two-fold: to be kinder to myself and let go of expectations. Oftentimes I am very hard on...reactions6comments
Advocates Sharing With Advocates: James Interviews René...If you read the first part of my conversation with advocate René Agterhof, you will have realized what a truly inspirational man...reactions6comments
My Pain Brought Me To Tears...Many days we as chronic pain patients are able to endure pain. I have had days where I have been at a...reactions4comments
United We Stand...Today we live in a world where a lot of people have an opinion. At times those free-floating thoughts are insensitive, and...reactions12comments
When it Comes to Pain, How Much is Too Much?...As a health coach who specializes in axial spondyloarthritis I often find myself talking with people about their experience of pain. Unsurprisingly...reactions3comments
My Fight...I have always been a fighter from the day I was born. I was born addicted to heroin from my biological mother's...reactions9comments
Debunking Able-Bodied Individuals Observations of Being Housebound...So many times we hear about how able-bodied people glorify being homebound. We hear things such as “It must be so nice...reactions6comments
Combatting Chronic Fatigue: 4 Ways to Cope with Physical Symptoms...Aside from the general knowledge of being absolutely exhausted all of the time, chronic fatigue is more than just feeling tired. In...reactions5comments
Sick Of Getting Sick...One of the more frustrating things on the long list of AS annoyances is how it affects us when we are ill...reactions5comments
My Experience With Accessible Transportation Services...There is an accessible transportation service in Ontario called TransHelp. Many disabled and elderly people use it. For a reduced fair, eligible...reactions4comments