Advocates Sharing With Advocates: James Interviews René...If you read the first part of my conversation with advocate René Agterhof, you will have realized what a truly inspirational man...reactions6comments
When it Comes to Pain, How Much is Too Much?...As a health coach who specializes in axial spondyloarthritis I often find myself talking with people about their experience of pain. Unsurprisingly...reactions3comments
My Fight...I have always been a fighter from the day I was born. I was born addicted to heroin from my biological mother's...reactions9comments
Back Surgery: Round 2...I was diagnosed with ankylosing spondylitis (AS) back in 2017. I believe it was after my 1st surgery and now I also...reactions4comments
Living the Worst Dream Ever...I am Neel from Mumbai, India. I don't know from when I am sleeping but I know this is the worst dream...reactions8comments
Debunking Able-Bodied Individuals Observations of Being Housebound...So many times we hear about how able-bodied people glorify being homebound. We hear things such as “It must be so nice...reactions6comments
A Few of My Favorite Things...(Raindrops on roses and whiskers on kittens...) It's that time of the year for me and Keegan, my husband with AS. The...reactions9comments
One of My Days With AxSpa...Tuesday, 6 in the morning, I need to get up and make sure the kids are up and start to get them...reactions6comments
Crankylosing Spondylitis...We can all feel cranky at times, this is normal. The frustration that comes from constant pain and fatigue, is for me, more than crankiness. I...reactions12comments
Getting Used to Blood Tests...Before I got sick, I would get blood tests done twice a year. Just to make sure I wasn’t deficient in anything...reactions5comments
How the Holidays Affected my AS...The holidays are long over now, but I felt the need to write this in case someone else suffered from them as...reactions9comments
AS Ruined My Birthday...It was a celebration I'd been looking forward to for months — heading down to New Orleans, Lousiana for my birthday, which...reactions8comments
Waiting For COVID’s Godot...Samuel Beckett’s absurdist classic Waiting for Godot often comes to mind when I’m left waiting for any significant period of time. Beckett’s...reactions2comments
Good Self-Care Is Ruthless...These past few tumultuous years make me wonder how my ancestors managed to do as well as they did with their own...reactions6comments
Grateful For My Emotional Support Dogs...I had another surgery just recently. This time it was a selective procedure for my thumb osteoarthritis on the right hand. I...reactions7comments
Unrealistic Arthritis Medication Ads...Have you noticed how good people in arthritis advertisements look? Each time I see one of those commercials, I think, wow, I...reactions5comments
Finding a Cure vs. Living Life...When you live with disability and or chronic illness, you can be so focused on finding that “cure” or thing that will...reactions5comments
How Working Impacts My Health...Trying to make a living while living with a chronic condition may be possible depending on the severity, but also may be...reactions5comments
What Are Biosimilars?...Biosimilars are highly similar to an already-approved biologic medication. Biologic medications (including biosimilars) are typically made from living organisms. Biologic medications may...reactionscomments
Losing a Close Friend Due to My Illness...I’ve written about this topic before, but it still hurts like hell to write about. It hurts to think about. I don’t...reactions12comments
