Pain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
explaining why you miss partiesThis is a very good question, I have tried different things and I struggle with an answer, If I just don´t show up everyone used to ask why is she...Reactions0reactionsComments1 repliesFriends & Family
What are your tips for preparing for a visit with your doctor? Share your best tips for preparing for a doctor's visit when dealing with AS/AxSpa. Whether it's gathering medical history, noting down symptoms, or bringing up concerns, your insights can help...Reactions0reactionsComments31 repliesTips & AdviceHealthcare TeamCommunity Support
Do you have additional health issues?What are other health issues you face besides your AxSpA/AS diagnosis?...Reactions0reactionsComments28 repliesDiagnosisComorbidities
What are you thankful for?Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...Reactions0reactionsComments5 repliesCopingCommunity SupportMental Health
What early signs did you experience that may have indicated you had axSpa?Many folks with axSpa have early warning signs that they don't initially pick up on but later realize they are symptoms of axSpa. Did you have any early warning signs...Reactions0reactionsComments7 repliesAwarenessSymptomsDiagnosis
Balancing rest and activity during a flareHi all, I have nr-axspa and am currently in the throes of a 12 day and counting flare up. It’s been so tough, as I know everyone in this community...Reactions0reactionsComments6 repliesAxial Spondyloarthritis
What is the scariest symptom or complications of axSpa?Getting an axSpa diagnosis and experiencing the symptoms can be truly frightening. In your opinion, what is the scariest symptom or complication of axSpa?...Reactions0reactionsComments25 repliesSymptomsAxial Spondyloarthritis Ankylosing Spondylitis
finally on the verge of a diagnosishello! i've been dealing with chronic pain and spinal issues for about 20yrs now. when i started experiencing a notable degeneration in my joints in 2020, i was referred to...Reactions0reactionsComments5 repliesNewly Diagnosed Community SupportNon-Radiographic Axial Spondyloarthritis
Living in assisted living with ASMy brother is 78 and has AS. He was diagnosed about 2 years ago. He is in assisted living due to other health issues but his AS is getting worse...Reactions0reactionsComments2 repliesTreatmentAnkylosing Spondylitis