Bed topper for AxSpaHi I was wondering if anyone had any recommendations for a bed topper to assist with pain and discomfort whilst sleeping. I find my sleep is quite disturbed and wake...Reactions 0 reactions Comments3 repliesPainsomnia SleepTips & Advice
HelpI’ve had this flare for the past 6 months.. despite weekly biological injections and starting methotrexate 2 months ago, my condition progresses. My spine, SI joints, peripheral joints, my eyes...Reactions 0 reactions Comments3 repliesCoping
Dismissive doctorsHas anyone else tried to explain the severity of symptoms like severe fatigue and pain to their doctor, and were having trouble being able to work, and were met with...Reactions 0 reactions Comments16 repliesSymptomsFatigue Work & Employment
AS/AxSpa Treatment ExperiencesWe invite you to discuss and share your personal journey with Ankylosing Spondylitis (AS) or Axial Spondyloarthritis (AxSpa) treatments. Whether you've tried medications, physical therapy, lifestyle changes, or other therapies...Reactions 0 reactions Comments8 repliesTreatmentAwarenessCommunity Support
Will you take our In America survey and help others understand the impact of AxSpA?To learn more about the challenges of living with AxSpA, we are conducting our In America survey. By taking our survey, you can bring awareness to the realities of life...Reactions 0 reactions Comments2 repliesResearch & Clinical Trials
Finally Relief!My last update spoke about my new care team. Wanted to quickly update my new treatment success. I’m diagnosed now with AxSpa (NR), fibromyalgia and Sjogren’s. I have completed about...Reactions 0 reactions Comments3 repliesNon-Radiographic Axial SpondyloarthritisComplimentary TreatmentComorbidities
Anyone else have Passive Suicidal Ideations?I have noticed more PSI as my disease progresses. I already have Anhedonia, but the thought of just dying by some means other than my own doing sounds better lately...Reactions 0 reactions Comments3 repliesAnkylosing SpondylitisMental Health
Does anyone also suffer with Osteitis Pubis?Hello, I am hoping for a referral to a Rheumatologist for more investigations (I am not diagnosed with AS) but my MRI scan has showed inflammation in my lumbar spine...Reactions 0 reactions Comments2 repliesDiagnosis
Have you found any exercises that help with your AxSpA symptoms?Exercise, movement, or physical therapy are important parts of treatment for people living with AxSpA spectrum conditions. If you're able to, exercise and movement offer great benefits, including posture improvement...Reactions 0 reactions Comments13 replies
Overall stiffnessHi All, just wanted to ask as this is all new to me. Do you experience stiffness? Stiffness in the hips, sacroiliac joints and spine to the point where you...Reactions 0 reactions Comments4 replies