Pain on walkingHi everyone. I am new here! Only formally diagnosed yesterday, after at least 7 years of being dismissed. I am laid wide awake uncomfortable in bed and questioning my diagnosis...Reactions0reactionsComments15 repliesAxial Spondyloarthritis
Reviews of bio meds ( RIVOQ) Hello, i am new here, i was diagnosed about 5 years ago which they said was called chronic Bilateral Sacroiliitis and on MRI it showed unactive, 4 years later i...Reactions0reactionsComments3 repliesAnkylosing SpondylitisAlternative TreatmentCommunity Support
Why don’t we have a live chat feature?Surely there are people who need to talk to others more frequently....Reactions0reactionsComments3 repliesAnkylosing Spondylitis
Hearing LossI've recently been dealing with a new comorbidity possibly related to spondyloarthritis. I have mixed hearing loss. One ear is much worse than the other with sensorineural hearing loss. I...Reactions0reactionsComments4 repliesAnkylosing SpondylitisComorbiditiesCoping
Burning sensation Hi. Im new to this group. I have burning sensations all over my legs and arms. My rheumatologist just dismisses me. Does anyone else experience this?...Reactions0reactionsComments3 repliesAxial Spondyloarthritis
Biologics not working.So after 7 years of my AS diagnosis, 6 years of changing my diet, and now at least 4 years of biologic medications. Methotrexate was like carpet bombing my entire...Reactions0reactionsComments2 repliesTreatmentSymptomsSide Effects
Pain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
explaining why you miss partiesThis is a very good question, I have tried different things and I struggle with an answer, If I just don´t show up everyone used to ask why is she...Reactions0reactionsComments1 repliesFriends & Family
What are your tips for preparing for a visit with your doctor? Share your best tips for preparing for a doctor's visit when dealing with AS/AxSpa. Whether it's gathering medical history, noting down symptoms, or bringing up concerns, your insights can help...Reactions0reactionsComments31 repliesTips & AdviceHealthcare TeamCommunity Support
Do you have additional health issues?What are other health issues you face besides your AxSpA/AS diagnosis?...Reactions0reactionsComments28 repliesDiagnosisComorbidities