How AS and AxSpa Are Different For Women...In the past, doctors thought that ankylosing spondylitis (AS) and axial spondyloarthritis (AxSpA) were more common in men than women. Now, there is a growing understanding that women and men...Reactions0reactionsComments20 comments
My Comfort Levels With COVID...COVID is coming up on its 2 year anniversary. Can you believe it? I can’t. The past 2 years have been so long but flew by at the same time...Reactions0reactionsComments1 comments
The Chronic Monster in Disguise...Who knew I would wake up one day not feeling the same ever again. Who knew, something I call the chronic monster, would take over my life, my body, my...Reactions0reactionsComments1 comments
Sudden Onset of Symptoms...Hello everyone, I went to a trip on november last year and something shifted after that. It started with pain in my groin area, had some itchiness in my scrotum...Reactions0reactionsComments1 repliesMisunderstood DiagnosisTreatment
Losing Weight With AS...Diet, and exercise.. that's what people tell us. But, how do you lose weight and keep in shape when low energy and pain makes working out and cooking difficult?...Reactions0reactionsComments12 repliesTips & AdviceDiet & NutritionExercise
My Symptom Tracking Method...I used to loathe the idea of symptom tracking. It stressed me out to think of making a list of all the parts of my body that felt like they...Reactions0reactionsComments13 comments
4 Video Games That Help Me Get Through High Pain Days...Over the last two years I’ve had to say goodbye (or hopefully just see-you-later) to some of my favorite hobbies. Struggling with chronic pain and fatigue can be so disabling...Reactions0reactionsComments3 comments
Taking a Moment To See the Lightness in the Darkness...To preface, I would just like to quickly say that no, of course we will not feel positive 24/7 while struggling with our illness. This is not one of those...Reactions0reactionsComments1 comments
Gut Issues and Trying to Find Answers...If I were told to choose one system that I didn’t want to malfunction and impede on my daily life, the digestive system would have definitely been in my top...Reactions0reactionsComments6 comments
New City, New Rheumatologist...In many ways, your quality of life with ankylosing spondylitis (AS) depends on your rheumatologist. That’s why it was nerve-wracking when I had to leave my rheumatologist of three years...Reactions0reactionsComments6 comments
How has being a woman shaped your AxSpa journey?...Women tend to experience the journey of living with AxSpa differently than men -- it often takes much longer for women to get a correct diagnosis and they tend to...Reactions0reactionsComments4 repliesAwarenessIntimacyTips & Advice
The Year of Living Painlessly...I’m firmly knocking on wood as a write this, but it’s been 12 months without a flare. Apart from two pregnancies, during which my body decided to stop waging war...Reactions0reactionsComments5 comments
Humira for the first time...Hi Guys! I was diagnosed 8 years ago and now I have decided to start biological treatment, more specifically with humira. the pains are not terrible but I can't say...Reactions0reactionsComments1 repliesAlternative Treatment
My New Dose of Cosentyx Put Me Into a Flare...Once a month on Fridays I have picked to have my injection day. You would say I have gotten use to it by now, but every time this day comes...Reactions0reactionsComments10 comments
International Women's Day Instagram Live...On Tuesday, March 8th at 6:30 PM EST, please join us on @axspa_healthunion for a special Instagram Live for International Women's Day! Featuring 3 of our amazing patient leaders, we...Reactions0reactionsComments0 repliesCaregivingAwarenessTips & Advice
Cymbalta...Hi everyone, I am currently on Cipralex for anxiety & depression, and my GP (who I love) is recommending I try switching to Cymlata as it can also help w...Reactions0reactionsComments4 repliesMental HealthDepressionComplimentary Treatment
The Animals Who Sit At Our Side ...Hello all, I just found this forum today and am so stoked to have people to talk to about ankylosing spondylitis who won't glaze over after the second syllable. I...Reactions0reactionsComments13 repliesDiagnosisCopingMental Health
Stomach Issues with AS...Hello Friends! About a year ago I was diagnosed with AS. Since then I have put in SO much work to feeling better. And I am finally starting to feel...Reactions0reactionsComments5 repliesMedical MarijuanaTips & AdviceSymptoms
Speaking A Shared Language of Pain...Lately, I’ve been in an endless flare-up — one of those flare-ups that change shape every day. It's my neck or my back or my hips. One day I can't...Reactions0reactionsComments6 comments
Experimenting With CBN...Here in Canada, Cannabis is legal. For a while now I have been using cannabis as a way to cope with my pain, as well as helping me fall asleep...Reactions0reactionsComments3 comments
