The Hardest Part of This Disease...How many of you wish more people around you would understand? How many of you wish living in this world, as a chronically ill person, with an invisible illness, would...Reactions0reactionsComments4 comments
My rheumatologist says fatigue is not part of this condition ...Hi all, Wondering if these are red flags that I need to find a new dermatologist. He tells me my fatigue which at times is still very intense is just...Reactions0reactionsComments21 repliesFlare ManagementHealthcare TeamNon-Radiographic Axial Spondyloarthritis
Advocating Helps My Mental Health...My advocating journey began in October 2020 with a fundraiser. A year later I continue to advocate every day. It was the best decision I have ever made. It changed my...Reactions0reactionsComments2 comments
Top 5 Things I've Learned As An AS Patient...Over the past few years, I've learned a lot about what it means to have ankylosing spondylitis. When I was first diagnosed, I lived in this hazy fever dream. I...Reactions0reactionsComments6 comments
Have you had a doctor ask, “Did you try taking ibuprofen?”...Hello! I was diagnosed with AS two years ago. My life has done a 180 in every way. I have never spoken with someone else who also has AS, and...Reactions0reactionsComments3 replies
Weather...I seem to be very reactive to bad weather. Is it all in my head or do others struggle with more pain on bad weather days?...Reactions0reactionsComments6 repliesSymptomsFlares
Work accommodations ...Hey everyone, I’m a high school teacher in Ontario, Canada, currently on leave for many reasons, but the unpredictability of my AxSpA is one of them, especially when it comes...Reactions0reactionsComments2 repliesAwarenessWork & EmploymentInsurance & Disability
Even The Nicest People Don't Get It...You know how living with ankylosing spondylitis can feel like speaking a language that only you understand? It can be really isolating and frustrating, even when other make a concerted...Reactions0reactionsComments5 comments
3 Frenemy Habits Threatening Your Self-Care...I hate finding out that somebody wasn’t actually my friend. It’s painful and embarrassing, especially when the evidence was plain for me to see all along. Betrayal can be confirmed...Reactions0reactionsComments4 comments
Day to Day: My Own Ankylosing Spondylitis Story...I give thanks everyday I get up. No one can understand what we go through or how we feel, unless you have ankylosing spondylitis (AS). I used to be angry...Reactions0reactionsComments2 comments
A Very Long Journey...In 1962, at the age of 22, I first began having trouble. It began with my legs and feet. At that time, they did not have a name for AS...Reactions0reactionsComments2 comments
Trying to conceive - coming off meds - so much pain!...My partner and I are trying to conceive. We have only just started our journey. A couple of weeks ago I found out that celecoxib, my main anti inflammatory is...Reactions0reactionsComments4 repliesTips & AdviceIntimacy & RelationshipsFlares
Too Disabled To Employ, Not Disabled Enough To Help...Getting diagnosed with AS really took a massive hit on my career. Before my spine started to act up, I was enjoying life working as a teacher in China. Then...Reactions0reactionsComments5 comments
I Feel Unwelcome in My Own Body...The other day a friend sent me a poem and one line really stuck out to me. It said, “Growing inside of a body that I no longer call my...Reactions0reactionsComments6 comments
Is it time to change Dr? ...Hello all you wonderful people. I’m new here. I hope your pain is ok today. I’ve been with pain management for 16 years now. Main issue is AS with all...Reactions0reactionsComments3 repliesCaregivingMental HealthDiagnosis
How I Care For Myself: 6 Types of Self-Care...This article will be about my self-care plan. I always thought self-care was just taking baths, going for a walk and lighting candles to relax. After some research, I learned that there...Reactions0reactionsComments9 comments
Exploring Fibromyalgia: Is It My AS or Something New?...I have been back on Humira for 6 months now, which is the same drug that had put me into remission for 8 years. Of course, I was not assuming...Reactions0reactionsComments3 comments
Starting biologics?...Hi all, I was diagnosed with AS over the summer and have tried NSAIDs, PT, Ibuprofen, etc. and I'm still not finding much relief from the stiffness and back pain...Reactions0reactionsComments9 repliesTreatmentTips & Advice
Tips For Going on Vacation With AS...Hey Guys, I'm planning on travelling to Mexico for a couple of weeks this summer to attend my friend's wedding and have a bit of a holiday after. I haven't...Reactions0reactionsComments15 repliesTips & AdviceTravel
Chronically Ill Through COVID-19...The COVID-19 pandemic as well as my spondyloarthritis (SpA) have tossed me in so many directions over the past 2 to 3 years - fear, panic, fatigue. I feel at...Reactions0reactionsComments5 comments
