The Easing of COVID Restrictions and My Fourth Vaccine...As Covid restrictions ease here in Ireland, my anxiety levels are doing the opposite. I understand that we can’t live forever in...reactions3comments
3 Tips for Caregivers When They’re Not Needed...Sometimes Keegan, my husband with AxSpa, doesn’t need me. Sometimes, Keegan is back at 80% or 90% or 99%, and I am...reactions4comments
Coming Out of the "Chronic Closet"...To be frank - when I was first diagnosed with AS I was embarrassed. I didn’t know a single person with an...reactions14comments
A Piece of My Heart...I woke this morning around 4:30 a.m. thinking of my father. When I was a child, he was up at the crack...reactions3comments
March Is the Worst Month (and the Best Month)...I’m sitting here after a long day of work along with Keegan, my husband with AS, talking about how the weather wrecks...reactions1comment
Failed back surgeries...Hi, I am 56 years old. Back in 2007, I was diagnosed with ankylosing spondylitis (AS). I had surgery which took an...reactions13comments
History of My Life...I was a swimmer and dance coach but with my untreated autoimmune disorder back in childhood (vitiligo) I experience a sharp flare-up...reactions7comments
AS and Colitis with Abdominal Pain...My ankylosing spondylitis (AS) started as a teenager but back then all they called it was “bad back”. I am now 72...reactions2comments
Evolution to AxSpA Diagnosis...I was diagnosed in 2014, with axial spondyloarthritis (AxSpA) after an MRI confirmed inflammation in areas of my spine. For the last...reactions3comments
Long Ago I Recieved A Wrong Diagnosis...Diagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't...reactions2comments
Self-Care For Spoonies: More Than A Buzzword...The National Institute on Mental Health says that self-care “means taking the time to do things that help you live well and...reactions4comments
Eye Irritation: My Journey With Iritis...Have you ever felt like you had a piece of dirt stuck in your eye, and no matter how many times you...reactions13comments
Chronic Illness And Sensory Overstimulation...Inspired by a post by The Unchargeables, an Instagram account dedicated to those of us with chronic illness, I was thinking about...reactions2comments
Bent Out of Shape at 93...I have had back pain for many years. What started as a friend poking me and saying, "stand up straight", has ended...reactions8comments
The Start of My Journey...Hi, as I am fairly new to the group I thought I would share my story as to when I got diagnosed...reactions25comments
60 Years with AS...I can say to other sufferers that you can get through this. I was diagnosed at the age of 17 and I...reactions4comments
Great, Kid! Don't Get Cocky!...Until yesterday, I’d gotten a bit cocky about my AS being so much better while taking Enbrel. I’d had a semi-productive morning...reactions7comments
Creating Routines With Unpredictable Symptoms...Cultivating and sticking to a strict routine when your symptoms can change, worsen or arise quite suddenly can be challenging to say...reactions3comments
Finding a Hobby That Works With Your Limitations...It’s heartbreaking watching your body slowly deteriorate and transform into something you don’t even recognize anymore. Many of us used to be...reactions6comments
3 Years Of AS: Reflecting On My Journey So Far...This January marks the third anniversary of my AS diagnosis. However, I can’t tell you the exact date. The previous January, a close...reactions2comments
