Getting Rejected for Disability Aid...At the end of my article "Too Disabled to Employ, Not Disabled Enough to Help", I was about to apply a second...reactions36comments
7 Years in No Diagnosis Land, Part 2...In part 1 of No Diagnosis Land, I told you how I started to have symptoms in different parts of my body...reactions7comments
When the Rain Came...Summer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa...reactions4comments
Sal Marx...Sal was previously on an advocate on AxialSpondyloarthritis.net. Marx is an artist who works to illuminate invisible disease experiences and disrupt the...
The Easing of COVID Restrictions and My Fourth Vaccine...As Covid restrictions ease here in Ireland, my anxiety levels are doing the opposite. I understand that we can’t live forever in...reactions3comments
3 Tips for Caregivers When They’re Not Needed...Sometimes Keegan, my husband with AxSpa, doesn’t need me. Sometimes, Keegan is back at 80% or 90% or 99%, and I am...reactions4comments
Coming Out of the "Chronic Closet"...To be frank - when I was first diagnosed with AS I was embarrassed. I didn’t know a single person with an...reactions14comments
A Piece of My Heart...I woke this morning around 4:30 a.m. thinking of my father. When I was a child, he was up at the crack...reactions3comments
March Is the Worst Month (and the Best Month)...I’m sitting here after a long day of work along with Keegan, my husband with AS, talking about how the weather wrecks...reactions1comment
Failed back surgeries...Hi, I am 56 years old. Back in 2007, I was diagnosed with ankylosing spondylitis (AS). I had surgery which took an...reactions13comments
History of My Life...I was a swimmer and dance coach but with my untreated autoimmune disorder back in childhood (vitiligo) I experience a sharp flare-up...reactions7comments
AS and Colitis with Abdominal Pain...My ankylosing spondylitis (AS) started as a teenager but back then all they called it was “bad back”. I am now 72...reactions2comments
Evolution to AxSpA Diagnosis...I was diagnosed in 2014, with axial spondyloarthritis (AxSpA) after an MRI confirmed inflammation in areas of my spine. For the last...reactions3comments
Long Ago I Recieved A Wrong Diagnosis...Diagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't...reactions2comments
Self-Care For Spoonies: More Than A Buzzword...The National Institute on Mental Health says that self-care “means taking the time to do things that help you live well and...reactions4comments
Eye Irritation: My Journey With Iritis...Have you ever felt like you had a piece of dirt stuck in your eye, and no matter how many times you...reactions13comments
Chronic Illness And Sensory Overstimulation...Inspired by a post by The Unchargeables, an Instagram account dedicated to those of us with chronic illness, I was thinking about...reactions2comments
Bent Out of Shape at 93...I have had back pain for many years. What started as a friend poking me and saying, "stand up straight", has ended...reactions8comments
The Start of My Journey...Hi, as I am fairly new to the group I thought I would share my story as to when I got diagnosed...reactions25comments
60 Years with AS...I can say to other sufferers that you can get through this. I was diagnosed at the age of 17 and I...reactions4comments
